New Legislation Introduced

Representative John Carter from Texas plus other Representatives introduced the “CAL Undiagnosed Diseases Research and Collaboration Network Act of 2013” (H.R. 1591) on April 17th to establish an undiagnosed diseases network.

The purpose for the bill is to:

  • Help physicians who handle cases of undiagnosed diseases search for similar cases and to be able to network and collaborate with the physicians handling similar cases
  • Help physicians examine cross-distance research so that cases of undiagnosed diseases can be cross-referenced against attributes of common diseases
  • Be able to better describe the types and prevalence of cases of undiagnosed diseases in the U.S
  • Obtain data such as genetic, environmental, and occupational factors that may be associated  with the various types of undiagnosed diseases
  • Be able to outline key demographic factors affecting undiagnosed diseases such as age, race or ethnicity, gender, sex geographic location, and family medical history
  • To better understand the length of time needed to render a diagnosis
  • Provide information on programs similar to the Undiagnosed Disease Program at NIH


NIH may award grants or contracts and cooperative agreements may be offered to the public or private nonprofit entities to collect, analyze, and report on data. The proposed legislation authorizes $5,000,000 for fiscal years 2014 through 2019.

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New HIT Workgroup Formed

A new health IT workgroup will have an initial meeting to identify what is needed to improve patient safety and promote innovation in health IT including mobile medical applications. The workgroup will report to the Health IT Policy Committee which advises the Office of the National Coordinator for HIT. (more…)

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Help for TBI Researchers

The Federal Interagency Traumatic Brain Research (FITBIR) database is a collaborative effort by NIH and the U.S. Army Medical Research and Materiel Command (USAMRMC) to develop a biomedical information system and data repository for TBI research.

FITBIR, an informatics system is a free web-based resource enabling data to be shared with methodologies and associate tools rather than just provide summaries of the information. (more…)

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WI Rural Health Seeks Proposals

The Wisconsin Office of Rural Health is seeking proposals for their “Rural Emergency Health Care Services Frequent User Project.” The Office will award one planning grant for up to $5,000 to a rural Critical Access Hospital (CAH). (more…)

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DOD Establishing DHA

Due to the growing cost of medical coverage, increasing number of beneficiaries, more services being covered, and the increasing cost of operating the Military Health Service (MHS), the budget for healthcare in the military is projected to grow to $95 billion by 2030. To effectively manage the system, DOD is looking to support the oversight and the management of what will be a new agency called the Defense Health Agency (DHA). (more…)

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Canada’s Accelerator Program

Eight innovative fast-growing Canadian companies in life sciences and information and communication technologies will join the new Canadian Technology Accelerator (CTA) program in Boston. The initial participants will undertake a three month intensive program at the Cambridge Innovation Center (CIC) near MIT where they will be able to access resources and be mentored by business leaders and venture capitalists. (more…)

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Ohio’s Assessment Survey

The 2012 Ohio Medicaid Assessment Survey (OMAS) conducted by RTI International was able to deliver needed health and healthcare data to public and private organizations to provide insight into the health status of the state’s Medicaid and Medicaid-eligible populations. The sample size interviewed included 22,929 adults 19 and older and 5,515 children up to age of 18.

Administered by Ohio Medicaid with the assistance of the Ohio Colleges of Medicine Government Resource Center, the OMAS is the key to assessing how Ohioans are in terms of clinical healthcare, insurance status, chronic and acute conditions, and mental health, along with surveying health status stressors such as poverty, joblessness, and low socioeconomic status. (more…)

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