NIH https://www.ninds.nih.gov launched a new database to collect information from clinicians on COVID-19 related neurological symptoms, complications, and outcomes as well as learn how the virus affects pre-exiting neurological conditions.
NIH’s COVID-19 Neuro Databank/Biobank (NeuroCOVID) created and maintained by NYU Langone Health in New York City, and supported by the National Institutes of Health’s National Institute of Neurological Disorders and Stroke (NINDS), will be a resource for clinical information as well as a resource for bio-specimens from people of all ages who have experienced neurological problems associated with the SARS-CoV-2 infection.
Healthcare providers and participating clinical sites across the U.S are invited to use the web-based data portal to submit de-identified information into the database, along with relevant bio-specimens collected during research studies or from previous clinical procedures and tests.
Information to be collected in the database includes neurological symptoms, comorbidities, disease course, complications, sequelae, and outcomes. A Global Unique Identifier (GUID) will be used to recognize data and biospecimens from each individual with no personally identifying information collected or stored in the database.
Researchers and clinicians can go to https://med.nyu.edu/departments-institutes/population-health/divisions-sections-centers/biostatistics/research/nih-neurodatabank-neurobiobank to request access to the database via the NeuroCOVID or for more information, go to https://covid19nih.gov.